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  1. Cahalan Sothron

    February 29th - Rare Disease Day

    It's mostly steroids to help shrink the tissue around the eye. There are some newer prescriptions out there, as well, but my case is not currently severe enough to need them. Really I just have to keep my eyes moist, so lots of artificial tears, and keep all my other junk under control (blood...
  2. Cahalan Sothron

    February 29th - Rare Disease Day

    I got lucky when I was diagnosed with my special diagnosis that, when I called our local eye care facility, I got an appointment with the only doctor in our area that specializes in treating it. He jumped right on it and helped get the active phase under control. Still, there are some days when...
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