- Admin
- #21
Really, just so much love to all of y’all sharing your stories
Thank you Nora has done so many things the doctors said she never would do. Doctors told her parents that she would never be able to laugh, but they have shared videos of Nora giggling on Facebook.all the support to this little one and to the badass parents 💪
Yes, I've met some people who had to have a real fight with their doctors, not just to be taken seriously, but to make the doctor understand that they are in pain.I can only imagine the ridiculousness someone with a rare disease would have to go through to be understood and treated.
I hope you can find an answer and a treatment that works (that is also affordable and with few negative side effects).Having just joined, I missed most of the discussion in real-time, but I'm actually really glad I'm here. I am currently on my disease diagnosis journey. My money is Lupus, like my aunt had. It's so frustrating when you're going through the process of getting an actual diagnosis because there is so much you don't know about things (and from a healthcare provider's perspective, so many different diagnoses that could fit this symptom or that). I can only imagine the ridiculousness someone with a rare disease would have to go through to be understood and treated.